Factores relacionados con el lugar de fallecimiento en cuidados paliativos pediátricos

• Autores: Silvia Ciprés Roig, C. Gutiérrez Rada
• Localización: ENE Revista de Enfermería, ISSN-e 1988-348X, Nº. 14, 3, 2020
• Idioma: español
• DOI: 10.4321/s1988-348x2020000300010
• Títulos paralelos:
  • Factors related to the place of death of patients in a pediatric palliative: care unit: what does the place of death of the children depend on?
• Enlaces
  • Texto completo (pdf)
• Resumen
  • español

    Los cuidados paliativos pediátricos pretenden responder a las necesidades que presentan niños con enfermedades amenazantes o limitantes para la vida y sus familias siempre desde un abordaje bio-psico-social y espiritual.

    En la unidad de cuidados paliativos pediátricos del hospital Sant Joan de Déu se atiende a estos pacientes allí donde se encuentren. La tendencia y prevalencia del lugar donde fallecen los niños atendidos por la unidad es variable con el tiempo y depende de diversos factores.

  • English

    Pediatric palliative care aims to respond to the needs of children with life-threatening and/or life-limiting diseases and their families from a bio-psycho-social and spiritual perspective. The pediatric palliative care unit of Sant Joan de Deu Hospitalis was designed to address these needs, both in hospital and at home. The trend and prevalence of where children die varies over time and depends on diverse features.

• Referencias bibliográficas
  • Chambers L, ACT-Association for Children’s Palliative Care. A guide to the development of children’s palliative care services. Bristol: ACT;...
  • Grupo de trabajo de Cuidados Paliativos para niños de la EAPC. Cuidados paliativos para lactantes, niños, y jóvenes: Los Hechos. [Internet]....
  • Craig, F., Huijer, A. S., Benini, F., Kuttner, L., Wood, C., Ferraris, P. C., & Al., E. (2007). IMPaCCT: standards for paediatric palliative...
  • World Health Organization. Cancer pain relief and palliative care in children. Geneva: WHO, 1998
  • American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative Care for Children. Pediatrics.2000; Vol.106...
  • Ministerio de Sanidad, Servicios Sociales e Igualdad. Sanidad 2014. Cuidados paliativos pediátricos en el Sistema Nacional de Salud: Criterios...
  • Navarro S, Martino R. Cuidados Paliativos Pediátricos: Epidemiología, organización. Fallecimiento en el hospital. Sedación. Actual Sephoes. 2013;25
  • Bender, H. U., Riester, M. B., Borasio, G. D., & Fuhrer, M. (2017). “Let’s Bring Her Home First.” Patient Characteristics and Place of...
  • Bluebond-Langner, M., Beecham, E., Candy, B., Langner, R., & Jones, L. (2013). Preferred place of death for children and young people...
  • Kurashima, A., Latorre, M., Teixeira, S., & de Camargo, B. (2005). Factors associated with location of death of children with cancer in...
  • Håkanson, C., Öhlén, J., Kreicbergs, U., Cardenas-turanzas, M., Wilson, D. M., Loucka, M.,Naylor, W. (2017). Place of death of children with...
  • Chang E, MacLeod R, Drake R Characteristics influencing location of death for children with lifelimiting illness Archives of Disease in Childhood 2013;98:419-424.
  • Kassam, A., Skiadaresis, J., Alexander, S. and Wolfe, J. (2014), Parent and clinician preferences for location of end‐of‐life care: Home,...
  • Feudtner C, Feinstein JA, Satchell M, Zhao H, Kang TI. Shifting Place of Death Among Children With Complex Chronic Conditions in the United States,...
  • Townsend, J., Frank, A., Fermont, D., Dyer, S., Karran, O., & Walgrove, A. (1990). Terminal cancer care and patients ’ preference for...
  • Karlsen, S., & Lecturer, J. A. S. (1998). How do cancer patients who die at home differ from those who die elsewhere? 6591(98), 279–286.
  • Bruera, E., Neumann, C.M., Gagnon, B., et al. 1999. Edmonton Regional Palliative Care Program: Impact on patterns of terminal cancer care....
  • Grande, G.E., Addington-Hall, J.M., & Todd, C.J. ~1998. Place of death and access to home care services: are certain patient groups at...
  • Mack, J. W., Hilden, J. M., Watterson, J., Moore, C., Turner, B., Grier, H. E. Wolfe, J. (2005). Parent and physician perspectives on quality...
  • Gethins, M. (2012). Pediatric palliative care in Europe expands. Journal of the National Cancer Institute, 104(1), 10–11.
  • Dussel, V., Kreicbergs, U., Hilden, J. M., Watterson, J., Moore, C., Turner, B. G. Wolfe, J. (2009). Looking Beyond Where Children Die: Determinants...